Category Archives: The Faith Community

Caregiver Burnout: What to Look for and How to Help

burnout - ngste CLosing sleep, poor eating habits, irritability or short tempered – these symptoms may start small and snowball quickly into what is referred to as caregiver burnout.   Professionals and families need to know what to look for and how to help caregivers.  It’s a serious matter and growing, as more families are caring for their loved ones at home with little or no help.

Caregiver burnout is a state of physical, emotional, and mental exhaustion that may be accompanied by a change in attitude – from positive and caring to negative and unconcerned.  Burnout can occur when caregivers don’t get the help they need, or if they try to do more than they are able to do – either physically, emotionally or financially.

Guilt is a huge problem with caregivers, especially those who are caring for someone with dementia or other chronic illness.  As I reflect on my many years caring for my parents, I think guilt was the over riding struggle.  Like most caregivers, I felt guilty when I was not spending time with my parents, and when I was caring for them I felt guilty that I wasn’t with my children and husband.  It was a constant balancing act – and more than often I felt that I was on the low end of the teeter totter.

Symptoms of caregiver burnout are similar to symptoms of stress and depression:  They may include:

  • Withdrawal from friends, family and social activities
  • Irritability
  • Altered eating patterns
  • Increased sugar consumption or use of alcohol or drugs
  • Frequent headaches or sudden onset of back pain
  • Impatience
  • Loss of compassion
  • Overreacting to criticism or commonplace accidents
  • Resenting the care recipient and/or situation
  • Wishing to “have the whole thing over with”
  • Feeling trapped
  • High levels of fear and anxiety

Playing the “if only games; saying over and over “if only this would happen; or “if only this hadn’t happened”

It is critically important that senior care professionals understand what to look for when they are talking with families.  Symptoms may start slowly but can quickly snowball into a serious situation. Protecting our older adults from neglect and abuse means a watchful eye and being able to guide families with support and help the need.

A few sources for help and assistance are:

      • Social workers
      • Faith based counselors
      • Family Caregiver Support Groups
      • Area Agencies on Aging (hotline 800-963-5337) (www.n4A.org)
      • Alzheimer’s Association 24/7 helpline (800-272-3900) (www.alz.org)
      • National Elder Abuse hotline (800-677-1116)

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www.ncea.acl.gov

    )

Pam Brandon is President/Founder of AGE-u-cate® Training Institute and creator Dementia Live™️ experience, helping caregivers worldwide to better understand dementia and aging, transforming professional and family caregiver’s ability to better care for our older adults.  

www.AGEucate.com

 

 

 

 

“Fragile- Handle with Care”.. Family Caregiver

AdobeStock_111421916Looking back to my years a family caregiver, I wonder if I’d worn a badge that read “Fragile – Handle with Care”,  it might have been easier for others to understand me.  Why I often had puffy eyes from crying, or scatter brained from sleep deprivation.  I can remember a certain period of time when I was issued a number of traffic violations…speeding through a school zone of all things (my children were both in elementary school at the time).  Thank goodness this was before cell phones.  There were times when I simply wasn’t myself.  I was emotional, physically and spiritually worn out and burned out.  Thinking clearly was often a challenge because I was overwhelmed.

The statistics are staggering.  According to AARP 2015 report, approximately 34.2 million Americans have provided unpaid care to an adult age 50 or older in the prior 12 months.  Nearly 1 in 10 caregivers is 75 years of age or older (7%).  These numbers are rising at alarming speed and will not slow down for many years.  

My 15 year journey of personal caregiving for my parents and 10 years of  professional work in the field of caregiver education continues to open my eyes to the very real challenges we face:

  • We have a public health crisis that is not being addressed quickly enough
  • Family caregivers continue to be in desperate need of education and support, especially those caring for loved ones with cognitive impairment
  • Most of our public agencies and community services are already stretched to meet the demands of providing services for older adults and their caregivers – HELP IS NEEDED FROM THE PRIVATE SECTOR
  • Faith Communities have enormous opportunities to minister to the aging adults and their families, but they need help and guidance in doing so

Families account for the lions share of caregiving taking place in this country (and around the world), yet studies consistently report that stress, fatigue, isolation, lack of education and support, understanding care options, finding respite services, and declining health are among the many challenges that loved one’s face.

For those of us passionate about helping these families better cope, find help, stay well (so that they can take of their loved ones) – we must work together for change.  I’m moved each time I have the privilege of talking with and helping a family.  Sometimes that is with education, many times it’s with a hug.  Always it’s showing someone that you understand and care.

Thank you to all we are able to work with in reaching out to families – understanding they are fragile and need to be handled with great care.

www.AGEucate.com

Pam Brandon is President and Founder of AGE-u-cate® Training Institute based in Dallas-Fort Worth.  A passionate advocate for family caregivers,  she leads a fast growing network of aging and dementia educators across the US and abroad and is the creator of the Dementia Live™️ Experience.

Creating Collages with Elders Living with Dementia

IMG_9448Our guest blogger is AGE-u-cate Master Trainer, Sue Wilson, LMSW, CADDCT, CDP  –  360 Elder Solutions (www.360eldersolutions.com)

In this article you’ll learn how to use collage making as a creative means to engage with your loved one living with dementia and enable their voice. You do not have to be an artist to enjoy the benefits of collage making. Making a collage involves choosing images, shapes, and ‘bits and pieces’, then arranging them, and gluing them onto a surface. Collages can be wildly complicated, beautifully simple, or anywhere in between. It’s the opportunities to make choices, express preferences and feelings, and create that empowers an individual and give them voice. Over time, brain changes caused by Alzheimer’s and other dementias diminish language abilities making it progressively harder to engage with others. It becomes more difficult to understand the spoken words of others and to verbally express personal preferences, needs, thoughts and feelings. Losing the ability to effectively communicate can cause frustration and isolation and lead to anger, loneliness and boredom. Art provides a positive and meaningful way to communicate when words are not readily available. Supplies Gather an assortment of meaningful items that communicate your loved one’s current and past interests and preferences. Collages can be made from just about anything and do not require a trip to the craft store. Step outside, into your garage, or look in your “everything” drawer! Gather items that are appealing and will help tell a story. Such as:

• Photos of family members, a favorite car, images and items related to past military service, employment and hobbies, school days, honors earned, celebrations, a favorite pet are elements of life stories for reminiscing and person-­‐centered care.

• For gardeners and nature buffs, gather fresh or dried leaves, dirt, seeds and blossoms to add life and texture to collages. Collect colorful and interesting treasures on a nature walk.

• Gather old magazines, color tissue paper, ribbons, fabric scraps and even old ties, large buttons, construction paper, crayons, and markers from around the house. Or, if needed pick some up at the grocery store.

• Sprinkle a few drops of vanilla, lavender, peppermint, or citrus essential oils on the fabric squares to engage the sense of smell. Apply favorite spices, perfumes or colognes.

  • Have glue sticks for paper, or glues for fabric or wood items.

• Stray puzzle pieces, scrabble letters, dominoes, playing cards and other game pieces.

• Poster board and construction paper work well as surfaces for paper collages, but use a sturdier surface when incorporating embellishments.

• Grow and vary collage supplies to meet and engage changing abilities, interest and preferences.

Set up

• Minimize distractions.

• Decide what you are going to glue the collage onto.

• Set out a variety of papers, images, bits and pieces and see what sparks interest. What is of interest today may not be interesting tomorrow.

• Items can be grouped into themes and placed in separate baskets and brought out on different occasions.

• Help get things started with positive comments and simple instructions. It can be difficult for individuals in later stages of dementia to get started so start by sifting through images and pieces, ask for help in selecting items and with arranging them onto the surface.

• Wait for a response and create the opportunity for reminiscence.

• As time goes on, an individual living with dementia is more apt to recognize faces and places from young adulthood, teenage years, and early childhood, which trigger early emotional thoughts and feelings.

• Images can be torn or cut from magazines and catalogues, same with strips or shapes of paper. Photocopies work as well as original photos.

• The possibilities are endless.

Do:

• Relax. It is as important for you to lay down sweet memories of your loved one now as it is for them to have your presence and company in the now.

• Pay attention to what sparks interest.

• Reminisce enjoyable moments and give compliments when looking at photos and images. For example: o How handsome or beautiful they look in a particular photo. o How proud you are of them for the award they received. o How well they played golf or when they got a hole in one. o Describe the smell and taste of the amazing chocolate cake they made – say something like “I think that was your mother’s recipe.”  How fun and exciting it was when you were out on the lake and they caught that giant trout. o Your compliments will help them enjoy their feelings associated with images, textures or scents.

• Pay attention to when your loved one starts tiring.

• Keep supplies handy and growing so art becomes a regular part of your rhythm and routine.

• Make note of items most enjoyed, changing abilities and moods.

• Display collages and share as gifts. These will become lasting treasures.

Don’t

  • Overwhelm with too many choices.
  •  Hurry the process or take over. It is all about the process and not the product. • Ask your loved one if they remember the name of a particular person or place.
  • Put your loved one on the spot by reminding them of what they do not remember.
  • For more ideas of using creative expression and art to engage your loved one in meaningful activities, contact Sue S. Wilson, LMSW, CADDCT, CDP at sue@360eldersolutions.com and visit her website at www.360eldersolutions.com.

www.AGEucate.com

How Dementia Friendly Communities Can Change Our Attitudes

cityscapeDementia is everyone’s business.  After decades of being relegated to an issue of institutionalism,  the idea that people living with dementia can have a quality of life is a huge step in furthering education, awareness and acceptance for  millions of Americans that are affected by dementia.  The Dementia Friendly Community movement is making great strides in bringing opportunities to change attitudes, actions and our thinking.

People living with dementia and their families should have access to community services such as grocery stores, retail shops, banks, recreation centers and their faith communities without the fear of embarrassment or isolation.  For those who are living alone, we must make services accessible so that they can continue to enjoy a quality of life that is not only safe but engages them with others.

While the “dementia friendly” concept is by all accounts, in its baby steps across most parts of the world, it is nonetheless capturing the attention of policy makers, businesses and consumers.

Allowing people with dementia to live independently for as long as possible means that as a society we must reduce the stigma of dementia and improve how we are educating all levels of society.  This means the check-out person at the local grocery store, pharmacy assistant and bank teller all need to understand how to better communicate and respond to people who are living with cognitive impairment.

The World Alzheimer Report 2015:  The Global Impact of Dementia estimates that there are currently 46.8 million people living with dementia around the world with numbers set to increase to 74.7 million by 2030 and 131.5 million by 2050.  There are over 9.9 million new cases of dementia each year worldwide, which breaks down to one new case every 3 seconds.

The Dementia Friendly Community objectives go beyond seeking safety and well-being for those living with dementia, but empower all members of a community to celebrate the capabilities and honor them as valuable members of the villages, towns and cities where they reside.

Dementia educators and advocates are greatly needed to help people understand dementia and even more, how to better to communicate, respond to their needs and support their families.   It offers communities the ability to take place in making real changes and encourages conversations about what needs to be done locally, nationally and globally to change our attitudes, actions and thinking about dementia.

Pam Brandon is President/Founder of AGE-u-cate Training Institute.  Their growing network of Master Trainers provides cutting edge aging and dementia education for long term care providers, hospitals, non-profits, higher education and the business community.  

www.AGEucate.com