Category Archives: Aging in the Workplace

World Alzheimer Report: Private Sector Response

Let’s not wait for the public sector to develop plans to address the dementia crisis. The private sector can and should play a large role.

This expert is from the Alzheimer’s Disease International website referencing the World Alzheimer Report of 2019.

“The report reveals the results of the largest attitudes to dementia survey ever undertaken, with almost 70,000 people across 155 countries and territories completing the survey. It spans four demographic groups: people living with dementia, carers, healthcare practitioners, and the general public.”

Further, the analysis of the study was carried out by the London School of Economics and Political Science (LSE).

Specifically, some of the key findings of the report include:

  • Almost 80% of the general public are concerned about developing dementia at some point, and 1 in 4 people think that there is nothing we can do to prevent dementia
  • 35% of carers across the world said that they had hidden the diagnosis of dementia of a family member
  • Over 50% of carers globally say their health has suffered as a result of their caring responsibilities even while expressing positive sentiments about their role
  • Almost 62% of healthcare providers worldwide think that dementia is part of normal aging
  • 40% of the general public think doctors and nurses ignore people with dementia

Call to Action for Private Sector

In addition, the report lists several calls for action, many of which rest with local, state, and national governments and agencies thereof.  However, the private sector can do a lot to address the disheartening vital findings. People are hurting, suffering, concerned, and uneducated about dementia.

Conversations at my faith community are under-way about how to minister to persons with dementia and their caregivers. Educate citizens about dementia to demystify, normalize, and create an environment of understanding and acceptance.  This is an excellent place to start.

In conclusion, call upon local experts to help start the conversation within your circle of influence and ask questions.  Success will come with each small step.

Julie has worked in Aging Services for over 30 years and has been a Licensed Nursing Home Administrator since 1990. She is a Certified Master Trainer with the AGE-u-cate Training Institute. Through her company Enlighten Eldercare,  Julie provides training and educational programs on elder caregiving for family and professional caregivers.  In addition, she is an instructor and the Interim Director of Gerontology at Northern Illinois University and lives in the Chicago Northwest Suburb of Mount Prospect, IL.

The Importance of Education for Informal Caregivers

Members of the First United Methodist Church in Arlington Heights, IL attend an Eldercare Educational Program about Understanding the Continuum of Eldercare.

Today, family members and other private individuals provide the bulk of care for frail older adults. According to The National Alliance for Caregiving, approximately 34.2 million Americans have provided unpaid care to an adult age 50 or older in the prior 12 months.  The assigned dollar value of unpaid caregiving is a staggering $470 billion.

Informal caregivers are a critical link in the system of eldercare. The care and support that is provided delays, and may even prevent the need for institutional care. Equally, we must acknowledge the financial impact that the informal caregiving system has on our nation. Consider the increased stress on the Medicaid system without these caregivers.

The American Association of Retired Persons offers a terrific directory of resources available to family caregivers. There are many agencies, both public and private, that exist to provide resources for family caregivers. To that end, caregivers can access website links, pamphlets, resource guides, and a plethora of other informational sources.

Importance of Education for Caregivers

Yet, with all of these resources, so many family caregivers still feel lost and overwhelmed. I have observed many caregivers who don’t know what they don’t know.  In addition, it is paralyzing for them to know where to start.

Caregiver education should be a more robust component of our eldercare system.  Education that leads to increased knowledge is necessary so that people can feel empowered and access the correct resources.

Caregivers need to understand the process of aging.  As astutely stated by The Age-u-cate Training Institute, it is hard to care for someone that you don’t understand.  Consequently, when caregivers feel like they are in the dark, stress, and frustration ensues.  Therefore, helping caregivers to understand what is going on will better equip them to find the right resources and ask the right questions.  Knowledge is empowering.

To list, a sample of educational topics for caregivers:

Creating opportunities to provide knowledge will increase understanding and compassion, reduce stress, and strengthen the process of caregiving.  In addition, it will improve the relationships between caregiver and receiver.

 

Julie has worked in Aging Services for over 30 years and has been a Licensed Nursing Home Administrator since 1990. She is a Certified Master Trainer with the AGE-u-cate Training Institute. Through her company Enlighten Eldercare,  Julie provides training and educational programs on elder caregiving for family and professional caregivers.  She is an instructor and the Interim Director of Gerontology at Northern Illinois University and lives in the Chicago Northwest Suburb of Mount Prospect, IL.

Sandwich Generation Realities

The sandwich generation reality is in full force as more men and women are caught in the middle of work, raising a family, and caring for their parents.

My friends and I often contemplate how we got to this point in life so fast. It wasn’t that long ago that we talked about babies, toddlers, and teenagers. Now, we find ourselves in that sandwich generation place. Our kids are older, and so are our parents. Caught in the middle of work, young adult children’s life events, and aging parents.

The aging-brain is complex, and my friends scramble to keep ahead of the curve-ball.  There are good days, and then the bad days for no apparent reason. A solution that works one day doesn’t work the next. They work hard to anticipate and prevent the next crisis.

I am often baffled to find the right words to help my friends. It is not easy to explain-away their parent’s irrational behaviors and illogical thoughts. The guilt that my friends experience as they try and make things OK for their parents is so hard to see.  My heart aches for them because they feel like they should be doing more despite the fact that they are extraordinary caregivers.

Always Parent and Child

I know from my own experience that parents don’t wish this for their children.   Parents who once provided the caregiving are now the care-receiver, however, the roles are not reversed.  My friends know that they will always be their parent’s child, and their parent isn’t a child.

Anger can also be a factor in this turbulent time. My friend shared today that her mother yelled at her for not understanding what she is going through.  That doesn’t feel good, for sure.

The remarkable thing is the resilience that my friends demonstrate. They are grateful to still have a parent in their life.  Frustration and exacerbation are factors, but bitterness and anger are not.

So what can we do for the friends among us who are in this role of elder-caregiver?  The Alzheimer’s Association has a long list of suggestions, and here are mine.

    • Listen. Let them tell you their stories- sometimes venting is just what they need
    • Avoid issuing unsolicited advice
    • Support with words of affirmation that they are doing a good job
    • Be a friend, not an expert (my lesson)
    • A brownie delivery every once in a while doesn’t hurt!

Julie has worked in Aging Services for over 30 years and has been a Licensed Nursing Home Administrator since 1990. She is a Certified Master Trainer with the AGE-u-cate Training Institute. Through her company Enlighten Eldercare,  Julie provides training and educational programs on elder caregiving to private and professional caregivers.  She is an instructor and the Interim Director of Gerontology at Northern Illinois University and lives in the Chicago Northwest Suburb of Mount Prospect, IL.

Ushering in a New Culture of Change at Pioneer Network

We are honored to be a part of the National Pioneer Network Conference kicking off today in beautiful Denver, Colorado.  Ushering in a New Culture of Change promises to be an enlightening and invigorating educational and networking event for participants and those serving the elder care industry.  AGE-u-cate® Training Institute will be offering it’s internationally acclaimed Dementia Live® Experience and Compassionate Touch® Program to innovators

Pioneer Network was founded in 1997 by a small group of prominent professionals in long-term care who were pioneers in changing the culture of aging. These forward thinkers developed the mission and vision, as well as the values and principles, that continue to guide their work to this day.  Today, Pioneer Network is a large, diverse group of passionate individuals from the entire spectrum of aging services. Most are engaged in some aspect of senior living or long-term care which includes nursing homes, assisted living, and other providers of services and supports for elders, as well as the generous supporters, including people that work, live in or visit these settings.

The goals of Pioneer Network have and continue to be a model of care that supports and makes possible for our elders these elements:

Life-Affirming, that is promoting a positive outlook that encourages optimism about life; one that is hopeful and ultimately enjoyable.

Satisfying, meaning that desires, expectations, and needs of the individual are being met so that the person has a sense of contentment.

Humane, which is characterized by tenderness, compassion, and sympathy for our elders and those who are suffering.

Meaningful, which simply is having a sense of purpose and a meaning in their lives.

Pioneer Network was started by pioneers and to this day continues to lead the way for a culture of change in elder care around the world.  We face many challenges ahead in meeting the needs of the fast-growing elder population,  but it is through the efforts of organizations such as this and many others, collaborating with passionate-life minded people that we have a future for elders that can usher in new opportunities for personal growth, improved care, and certainly a life worth living.  Thank you to the leaders at Pioneer Network for the hard work you do every day to improve the lives of our elders and those who serve them.

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and their caregivers.  Pam is the creator of the internationally acclaimed Dementia Live® Simulation Experience and other innovative dementia programs.  Pam may be reached at pam@AGEucate.com.