Tag Archives: leadership

Top Ten Tips for Improving the Dining Experience for Persons with Dementia

Although persons living dementia may have challenges with eating, such as chewing, ability to taste or smell food, or remembering how to eat, the dining experience can have a tremendous effect on their socialization, how much they eat and if the time they spend eating is enjoyable or frustrating.    Improving the dining experience is certainly possible, whether in a community-based setting, a hospital in the home or even in a restaurant.

Understanding their challenges is the first step to making positive changes.

Let’s look first at noise.  Of all the senses, hearing is the one that has the most significant impact on people with dementia in terms of quality of life.  This is because dementia can worsen the effects of sensory changes by altering how the person perceives stimuli, such as noise and light.

Dining areas are often challenged with multiple layers of noise that can cause unrest and agitation.  If a TV or radio is on at the same time that family (or staff) is talking, dishes cutlery clattering, together this can lead to a heightened sense of disorientation.  While it is not possible to remove this noise altogether, it is certainly possible to observe how much noise is taking place.  Perhaps a solution would be to have quiet, calm background music,  refrain or limit conversations, and certainly make extra efforts to reduce the clatter of dishes.

As sensory simulation changes, loss of taste and ability to smell are often adversely affected.  This may be due to the brain changes taking place or use of medications or a number of other reasons.  This means we may have to get more creative in how food is displayed, so that is visually more appealing, even though they cannot taste and smell as sharply as they once were able to do.

Various studies have been done that show the color of the plate had a significant effect on how much food was consumed – as much as a 25% increase by simply changing the plates to a bright canary yellow or red.

While we are talking about the color of the plate, let’s also think about the food that goes on the plate.   A person living with dementia may not have visual/spatial abilities that a normal person has.  In fact, as dementia progresses, vision changes.  This is even more reason to make food more colorful and appealing.  Keeping in mind that they sometimes don’t eat as much as one normally would, due to a number of reasons, focus on the quality of food over quantity.  Having a variety of colorful food that is easy to chew, in bit size pieces, mashed or pureed (if needed), may make it much more appealing for a person with dementia to want to eat and have the ability to eat independently or with minimal assistance.

“This looks delicious!”  Simple encouraging prompts to eating can have positive effects on another person.

Slow down.  Allow the person to eat at his/her pace.  This will vary greatly depending on their abilities.   In almost all cases, persons with dementia are going to take longer to chew, manipulate their utensils,  and simply process the dining experience.  That’s okay.  The goal is nutritional intake,  engaging in a pleasant experience and having the person leave have the emotional takeaway that eating is something that they enjoy.

We talked about noise and how overstimulation can have negative consequences, especially during mealtime.   Some people with dementia will enjoy the company of others and having conversation, but know that often too much conversing can distract them from the task of eating.  Be mindful that each person is different and this may also change for them from meal to meal depending on the environment and other factors.  That said, when they start eating may be a good time to limit conversation so they can concentrate on their task.

Practicing patience, empathy, and understanding is always the goal when helping a person with dementia.  Nutritional intake is important, however, we have to read the person’s body language and take cues.  If they are not receptive to eating at a particular time, then simply accept this instead of forcing something that may lead to behavioral expression.

Summary of Top Ten Tips for Improving the Dining Experience

  1. Reduce over-stimulating noise.
  2. Consider soft background music appropriate for that person.
  3. Replace white plates with colors like yellow or red.
  4. Present colorful food and focus on quality, not quantity.
  5. If needed, present food in bite-sized pieces or mashed.
  6. Use encourage prompt such as “This food looks delicious!”
  7. Slow down and practice patience!
  8. Limit conversation when the person begins to eat.
  9. Have a goal of making the dining experience pleasant while focusing on nutritional intake.
  10. Be flexible and understanding that eating times may often need to be adjusted.

Pam Brandon is President/Founder or AGE-u-cate® Training Institute and Creator of the internationally recognized Dementia Live® Simulation Training program.  

http://www.AGEucate.com

 

 

 

 

 

 

 

 

Why Aging Well is Everyone’s Business

Having a sense of purpose and a community network in which to provide these avenues seems to be important for brain health, an important component of aging well. But aging well starts with more basic work.  Some of these include:

  • Stay positive
  • Get physically active
  • Get enough sleep
  • Eat well
  • Connect with other people
  • And take care of your spirit

Why is Aging well everyone’s business?

According to research from Mental Health America, the population of people over age 65 in the United States is projected to double between 2000 and 2030, from 35 million to 70 million. While mental illness is not an inevitable part of aging, and older people actually experience fewer mental health conditions (excepting cognitive impairment) as they age, approximately 6.9% of people aged 65-74 experience “frequent mental distress, and many experience mental health and substance use conditions associated with loss of functional capacity even though a formal diagnosis may not be justified. Anxiety and depression and the psychotic symptoms of dementia in all its forms must be addressed for people to age well, and MHA envisions a supportive, integrated system of both psychosocial and medical care that encourages people to meet such challenges as they occur.

Older people with mental health problems are a diverse population including:

  • people with lifelong serious and disabling mental illnesses;
  • people with Alzheimer’s disease and other forms of dementia (often with co-occurring episodic anxiety, depression, and psychosis);
  • people with severe depression, anxiety, and emotional and behavioral problems that contribute to high rates of suicide, social isolation, and preventable institutionalization;
  • people with less severe disorders that nevertheless limit their ability to age well; and
  • people who abuse substances, primarily alcohol and pain medications, but increasingly including people with lifelong addictions and those who use illegal substances recreationally.

As stated by Deborah Padgett in the conclusion to her Handbook on Ethnicity, Aging, and Mental Health, aging need not be a time of “irreversible decline and loss,” and depression and emotional distress can be mastered. She concludes: “Declines usually associated with aging are quite malleable and influenced less by aging per se than by a host of psychosocial and lifestyle factors such as stress, diet, and exercise. Among the [most important] psychosocial factors associated with successful aging are a sense of control and autonomy and social support.” So “positive aging” can bring about overall wellness for individuals, focused on their personal goals and current place of residence, social support system, and community. The primary method is by strengths-based therapies that build the healthy habits that MHA refers to as “wellness.” These strengths and supports are critical to aging well.

Still, nearly half of people over age 65 with a recognized mental or substance use disorder have unmet needs for services. Older adults with mental health or substance use conditions often do not seek specialty mental health care. They are more likely to visit their primary care provider– often with a physical complaint.  And though treatment can be an important component of aging well, misdiagnosis, especially by non-specialists, is a significant concern, as is an overreliance on drugs rather than psycho-social treatment. The interaction among physical, emotional and behavioral conditions is complex in older people.

Aging well may seem simplistic in practice, but for society at large, we must integrate collaborative initiatives among public and private sectors that offer multi-level approaches to reaching our aging adults and their families with education, resources, and support.   Eldercare providers, aging and mental health public service organizations, faith communities and member associations must prioritize this agenda as we enter an era of extreme aging.

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and those who serve them.  Pam is the creator of the internationally recognized Dementia Live Simulation experience, helping caregivers to understand first-hand what life with dementia might be like.   This program is transforming training for law enforcement, first responders, healthcare and long-term care professionals and families and anyone who works with aging adults and their families.  

http://www.AGEucate.com

Why YOUR City Needs to become Dementia Friendly

I’m honored to be part of the exciting Dementia Friendly Fort Worth initiative.  Not only are we the first major city in Texas to undertake this effort, but one of the largest cities in the United States.  We are part of Dementia Friendly America (DFA), which is a multi-sector collaborative on a mission to foster “dementia friendly” communities across the nation.

DFA is the work of over 35 national, leading organizations, the Dementia Friendly America initiative is catalyzing a movement to more effectively support and serve those across America who are living with dementia and their family and friend care partners. The lead organizations represent all sectors of the community and are collectively leveraging their national reach to activate their local affiliates, members, and branches to convene, participate in and support dementia friendly community efforts at a local level.

Dementia Friendly Fort Worth is organized to educate people in all sectors of the community about dementia, to assist them in becoming dementia friendly and to support and care for those living with dementia and their care partners.

The program offers:

  • Education opportunities for all persons to increase awareness and understanding of dementia
  • Help in the development of better services for persons living with dementia and their care partners
  • Guidance to all sectors of the community to become dementia friendly in their day to day interactions with persons living with dementia
  • Encouragement and support practices and opportunities that enrich the lives of persons living with dementia and their care partners.

Why be a Dementia Friendly city?  There are more than 120 types of dementia, for which there is currently no cure.  More than 60% of these individuals live in your neighborhood and use the businesses and services in your community.   Currently, there are over 10 million Americans living with Alzheimer’s Disease and other forms of dementia.  This number is expected to grow drastically in the years ahead.  The massive group of baby boomers (10,000 a day turning 65) is living longer, and dementia occurrence increases with age.  A person who is 65 has a 1 in 10 chance of having dementia and that rises to a 1 in 3 chance for someone 85.  The fastest growing segment of our population are those 85 and over.

According to the Dementia Friendly Toolkit Overview, communities are encouraged to progress through four phases as they journey to become dementia friendly: Convene, Engage, Analyze, and Act.  In Fort Worth, we have created sector groups which are defining standards for various business groups to be certified as dementia friendly, using the toolkit from Dementia Friendly America.

In just 4 months, leaders from faith communities, long-term care, hospitals, businesses, Alzheimer’s Association, Area Agencies on Aging and others have come together to move forward with outlining initiatives and plans to reach out to the greater Fort Worth community.  It’s very exciting to see the stakeholders investing in this project, including the FW Mayor and city council.  Everyone sees the urgent need to address the needs of those living with dementia and their care partners.

Funding for dementia friendly projects comes from donations from individuals, companies, organization, and foundations which have a desire to make a difference in the lives of those living with dementia.  First United Methodist Fort Worth was the catalyst to provide important seed money for this project, and other are quickly joining them.  It’s definitely a model of grassroots efforts and the passion of hundreds of people from virtually every sector of the community.

For more information on how to become a dementia-friendly city http://dfaamerica.org.   

 Pam Brandon is President/Founder of AGE-u-cate® Training Institute and a passionate advocate for older adults and those who serve them.  She is the creator of the internationally recognized Dementia Live® program, a transformational experience, and training to help care partners understand life with dementia.  Dementia Live is an educational outreach program of the Dementia Friendly initiatives in Fort Worth and Grayslake, Illinois.  

Noise Pollution and Older Adults – A Real Health Hazard


When was the last time you walked into a restaurant hoping for a relaxing dinner only to feel like you were in the middle of a rock concert, and a bad one at that?  You’re not alone.  Noise pollution is a real health hazard, especially for older adults.  Yes, I’m in the AARP club myself, but don’t consider myself “old” (and not sure when that starts)  but I’ve noticed how noise has affected me as I’ve aged.

The EPA (Environmental Protection Agency) defines noise pollution as “unwanted or disturbing sound,” explaining that “sound becomes unwanted when it either interferes with normal activities such as sleeping or conversation or disrupts or diminishes one’s quality of life.  The annoyance can have major consequences, primarily to one’s overall health.”

Studies show that noise can have a direct and immediate effect on a person’s health.  Older adults are especially at risk simply because as human’s we often react with a “fight or flight” response.  With prolonged or obtrusive noise, physiological changes actually are taking place in the nervous, hormonal and vascular systems, resulting in potentially long-lasting consequences.

What can exposure to the constant and excessive level of noises cause to our health?  Stress-related illnesses, high blood pressure, speech interference, sleep disruption, depression and lost productivity, to name just a few.  Noise pollution is serious business.

The World Health Organization (WHO) identified the following categories of  adverse health effect of noise pollution on humans:

  1.  Hearing Impairment due to noise-induced hearing loss is the most common and often-discussed health effect.  This may be accompanied by abnormal loudness perception, distortion or tinnitus, which is inflammation of the ear.  Tinnitus may be temporary or may become permanent after prolonged exposure.
  2. Interference with spoken communication;  Noise pollution interferes with the ability to comprehend speech and may lead to a number of personal disabilities, handicaps and behavioral changes.  These might include problems with concentration, fatigue, uncertainty, lack of self-confidence, irritation, misunderstandings, decreased working capacity, disturbed interpersonal relationships and stress reactions.
  3. Sleep disturbances:  Uninterrupted sleep is known to be a prerequisite for good physiologic and mental functioning in healthy individuals.  Environmental noise is one of the major causes of disturbed sleep.  When sleep disruption becomes chronic, the results are mood changes, fatigue, depression, a decrease in quality of performance and other long-term effects on well-being.
  4. Cardiovascular disturbances: The nervous system can be temporarily, and even permanently affected by noise, acting as a biologic stressor, triggering a negative response to the cardiovascular system and increasing the risk of cardiovascular disease.
  5. Disturbances in mental health;  Noice can accelerate and even intensify the development of mental disorders;  however, it is not a direct cause of mental illness.  The elderly and those with underlying depression may be particularly vulnerable to these effects because they may lack adequate coping mechanisms.
  6. Impaired task performance: Noise pollution impairs task performance at school and at work, increases errors, and decreases motivation.  Reading attention, problem solving and memory are most strongly affected by noise.  Two types of memory deficits have been identified under experimental conditions; recall of subject content and recall of incidental details.

Older Adults are often at risk for increased vulnerability to noise pollution due to slower mental processing and sensory changes that take place in the aging process.  Persons living with dementia are at an even great risk as they often struggle with processing what is going on in their environment, decreasing stimuli can decrease certain behaviors.  Turning off the TV or radio in the evenings and reducing chatter or at any time you want them to wind down may help decrease agitation.

For care communities, shift change if often met with noise and chatter of oncoming and off going employees.  Even shuffling of papers during this busy time can add to agitated behavior, especially with persons living with dementia.

Not all noise is detrimental.  In fact, calming background music and can have a positive effect on mood, relaxation, reduced anxiety, and agitation.  This is especially true for meal times or helping to induce sleep before naps or bedtime.

Understanding sensory change in older adults, especially those living with dementia is critically important for care partners working in elder care communities, home care providers, families and for businesses who serve older adults.

Pam Brandon is President/Founder of AGE-u-cate® Training Institute and creator of the Dementia Live® simulation and awareness training being implemented by providers across the US and internationally.  

http://www.AGEucate.com