Category Archives: The Family Caregiver

How Dementia Friendly Communities Can Change Our Attitudes

cityscapeDementia is everyone’s business.  After decades of being relegated to an issue of institutionalism,  the idea that people living with dementia can have a quality of life is a huge step in furthering education, awareness and acceptance for  millions of Americans that are affected by dementia.  The Dementia Friendly Community movement is making great strides in bringing opportunities to change attitudes, actions and our thinking.

People living with dementia and their families should have access to community services such as grocery stores, retail shops, banks, recreation centers and their faith communities without the fear of embarrassment or isolation.  For those who are living alone, we must make services accessible so that they can continue to enjoy a quality of life that is not only safe but engages them with others.

While the “dementia friendly” concept is by all accounts, in its baby steps across most parts of the world, it is nonetheless capturing the attention of policy makers, businesses and consumers.

Allowing people with dementia to live independently for as long as possible means that as a society we must reduce the stigma of dementia and improve how we are educating all levels of society.  This means the check-out person at the local grocery store, pharmacy assistant and bank teller all need to understand how to better communicate and respond to people who are living with cognitive impairment.

The World Alzheimer Report 2015:  The Global Impact of Dementia estimates that there are currently 46.8 million people living with dementia around the world with numbers set to increase to 74.7 million by 2030 and 131.5 million by 2050.  There are over 9.9 million new cases of dementia each year worldwide, which breaks down to one new case every 3 seconds.

The Dementia Friendly Community objectives go beyond seeking safety and well-being for those living with dementia, but empower all members of a community to celebrate the capabilities and honor them as valuable members of the villages, towns and cities where they reside.

Dementia educators and advocates are greatly needed to help people understand dementia and even more, how to better to communicate, respond to their needs and support their families.   It offers communities the ability to take place in making real changes and encourages conversations about what needs to be done locally, nationally and globally to change our attitudes, actions and thinking about dementia.

Pam Brandon is President/Founder of AGE-u-cate Training Institute.  Their growing network of Master Trainers provides cutting edge aging and dementia education for long term care providers, hospitals, non-profits, higher education and the business community.  

www.AGEucate.com

Collaboration – Producing Creative Solutions in Senior Care

collaborationOur hyper competitive, profit driven business world often scoffs at the idea of collaboration.  I supposed I’m naive, but I want to think that those in senior care are more passionate and compassionate about working with others for the greater good.  I still believe this is true for most of us.  Working well with others almost always comes back to us ten fold.  This is true in life and business.

If there is any field that begs for creative problem solving it’s senior care.  We’re helping elders and families navigate rough seas.  More often than not, these circumstances don’t fit neatly in a box with easy solutions.  Instead there are complex decisions to be made at every juncture.. not just from families but from those who are serving this client base.

Collaboration is the action of working with someone to create or produce something.  If we look at the power of collaboration in creative problem solving, it only makes sense that those in this industry and those who service this industry need to be doing a whole lot more collaborating.

The geriatric population of the United States is growing rapidly, and the senior care industry is expanding to meet that increasing demand.

By U.S. Census Bureau estimates, there will be 83.7 million people over the age of 65 in the nation by the year 2050 – that is almost double the population of people that age in 2012. The ‘baby boomer’ generation began turning 65 in 2011. By 2050, any surviving baby boomers will be over the age of 85.

Many aspects of the senior care industry will likely advance and expand rapidly as the population continues to age.

The global elderly care services market was $629 billion in 2014, according to Grand View Research, with institutional care services accounting for about half that market. Growing at a compound annual growth rate (CAGR) of 6.1%, the global market will likely reach $1.2 billion by 2022; home health and personal care will likely experience tremendous growth during this period.

This phenomenal growth will most definitely open unlimited doors for those who see the need to better serve their customers by working well with others.   None of us can operate in a vacuum, and certainly not in an industry that will continue to evolve as new generations require different levels of care, workforce preparedness   will become increasingly paramount, and staff shortages across the spectrum will mean all of us must be prepared to connect and collaborate.

Pam Brandon is President/Founder of AGE-u-cate Training Institute.  Collaborating with an international network of Master Trainers in providing innovative training for front line care staff, families and clinicians, AGE-u-cate is transforming the landscape with experiential tools to improve care for those with dementia.  

www.AGEucate.com

Hello, I am an Alzheimer’s Survivor. Can I Tell You My Story?

Alzheimer Survivor
You’ve seen the inspiring T-shirts. “I’m a cancer survivor” or “I’m a heart attack survivor”.  I’m in search of one that says “I’m an Alzheimer’s survivor”.

The reason there isn’t one is that no one survives Alzheimer’s. The disease has no cure, no way to slow it’s debilitating effect on the brain and body  – and the disease is growing at breakneck speed.

The 76.4 million baby boomers born between 1946 and 1964 are turning 65 at a rate of approximately 10,000 a day. The risk of Alzheimer’s increases with age, which means the number of people developing the disease will continue to rise to levels far beyond anything we’ve imagined.

The worldwide statistics are even more staggering and downright frightening. The fact that Alzheimer’s is touching more and more lives each day reminds us of the crippling effect on the financial, emotional and spiritual lives of families, not to mention the overwhelming burden on an already broken healthcare system.

Millions of families have to deal with the devastation and helplessness of a loved one struggling with Alzheimer’s and other forms of dementia. Their stories are varied, but certainly there is a common thread of endless frustration,  guilt and exhaustion.

Underneath and often unnoticed, there is a knot in the hearts of caregivers. Grieving the loss of the person they once knew and moving to acceptance of today’s reality is often crippling. Role reversal for adult children and spouses is neither easy or natural.

The fact remains that currently there is no cure for Alzheimer’s. Research is critical, but right now – today – we need hope for those living with dementia and their care partners.

Thanks to person centered care initiatives, quality training and a growing network of support services for families, we are turning the corner.   Is it happening fast enough?  Most definitely not, but with growing awareness, advocacy and education, changes for the better are taking place every day.

Senior care leaders must invest in quality initiatives that improve the culture for those who live in, work and visit their communities. The fact is clear – elder care is fast becoming about dementia care.

It’s in our hands to change the story!

Pam Brandon is President/Founder of AGE-u-cate Training Institute, whose mission is to create transformative change for an aging world by developing and delivering cutting edge training and education for senior care, healthcare, non-profits, and the educational community.

www.AGEucate.com

Montessori methods – beyond child’s play for dementia care

automobile di latta a molla - setteMontessori’s education method for childhood learning was launched in the early 1900s by Maria Montessori.  It calls for free activity within a “prepared environment”, meaning an educational environment tailored to basic human characteristics, to the specific characteristics of children at different ages, and to the individual personalities of each child. The function of the environment is to help and allow the child to develop independence in all areas according to his or her inner psychological directives. In addition to offering access to the Montessori materials appropriate to the age of the children, the environment should exhibit the following characteristics:

  • An arrangement that facilitates movement and activity
  • Beauty and harmony
  • Cleanliness of environment
  • Construction in proportion to the child and her/his needs
  • Limitation of materials, so that only material that supports the child’s development is included
  • Nature in the classroom and outside of the classroom
  • Order

Thankfully, advances in the field of elder caregiving have moved activities beyond the three Bs (bingo, birthdays and Bible) to more resident centered engagement activities.  Culture change initiatives have definitely helped to push the creative buttons of activity, memory care and  resident engagement leaders to foster the understanding that every person has individual needs and capabilities and a one-size fits all approach simply doesn’t work.

Montessori is NOT a program but a philosophy  based on individualism.  Translating this to eldercare, the Montessori philosophy is neither difficult to understand and certainly not complicated or expensive to integrate.  A few key points to get started is to take time to:

  • Understand the elder’s interests and needs
  • Learn their current physical, social and emotional needs
  • Create opportunities for them to develop their capabilities
  • Encourage positive learning by keeping it simple
  • Develop positive communication skills (slow down, use eye contact, use skilled touch to engage)
  • Use humor and always smile – it will help relieve frustration and build trust between care partners

And lastly remember basic eldercare protocol:

  • Don’t use materials that are childish
  • Limit other stimuli while trying to engage in an activity.  ex: tv off is almost always going to lead to more successful engagement
  • Avoid at all costs, correcting someone but instead guide them gently as they attempt to accomplish a task.
  • Remember there is never a “right” or “wrong” way to do something

www.AGEucate.com