Category Archives: Dementia Live

Preparing Future Generations for an Aging World

Aging isn’t just for old people – we are all connected. As the world ages at break-neck speed, how well are we preparing future generations to live in an aging world?  Are we treating the very young and very old in our society as bookends simply in place to hold our “middle” years in place?

These are certainly global questions with no easy answers, but for those of us in the aging sphere,  these questions merit deep contemplation.

Researchers have studied the most successful aging societies and found that those who intentionally focus on intergenerational unification are the healthiest.   Certainly, the core of preparing future generations for an aging world must encompass the notion that in order to connect with an aging person, we must first understand them.

What can we do to facilitate understanding and reduce ageism for future generations?  We must educate younger generations.  What happens as we grow old?  Aging changes our senses, our physical abilities, and appearance.  What is most disturbing to young people,  and often what they fear most, are when old people no longer have their cognitive capacities intact.  Because they don’t understand what is happening, their first reaction is often fight or flight.

We are all connected – not just as families, but as neighbors, faith communities, co-workers, and social circles.  As we age, those circles tend to get smaller, and far too often that excludes other generations, and instead of bridging the gap, it widens.  We rob our young people of experiencing the wisdom and love that older generations provide, and we rob our older generation of the joy and playfulness of youth.  No one wins and society becomes increasingly segregated, thus the bookend analogy.

We have opportunities to intentionally change this trajectory by lessening fear,  creating mission-based intergenerational opportunities and allowing young people to experience what it’s like to age, so they gain an early understanding that aging is a part of life.

I love Rosalyn Carter’s quote…”There are only four kinds of people in the world: those who have been caregivers, those who are currently caregivers, those who will be caregivers, and those who will need caregivers.”  If we embrace the reality of our aging world in this perspective, does it not make sense to begin early with our children to embrace the journey of aging without fear but with understanding and care?

Let’s do more to bring intergenerational aging education to our communities.  With it, we will all be better citizens and will create a world where bookends don’t exist.

Pam Brandon is President and Founder of AGE-u-cate® Training Institute and a passionate advocate for older adults and those who serve them.  Pam is the creator of the Dementia Live® program, helping thousands around the world to better understand sensory change and cognitive impairment.

www.AGEucate.com

Creating Neighborhoods for Life – What Research Tells Us

The number of older people is rising dramatically, particularly those in the 85 years and above age group.  Because the likelihood of developing dementia increases with age, reaching a one in 3 chance by the time a person reaches 85, we must turn our attention to eldercare, age-friendly initiatives to be that of dementia-friendly initiatives.  Let’s look at what research tells us about how our neighborhoods can be transformed to age-friendly, dementia-friendly places for people to live as they grow older.

The Wellbeing in Sustainable Environments Research Unit of the Oxford Institute for Sustainable Development in the UK concluded a three-year research project, examining how the outside environment could be more dementia-friendly.  These findings are enabling designers to consider criteria in developing dementia-friendly neighborhoods, whether that is in urban, suburban or rural areas.

Summary of their key findings include:

  • Older people with dementia, particularly in mild to moderate stages, continue to go out alone, many times daily.
  • Older people with dementia tend to limit their outside activities to relatively undemanding situations, such as going to the corner shop, posting a letter or going for a walk.
  • Older people with dementia tend to use cars or public transport only when accompanied by others os that independent outside activity is restricted to the immediate neighborhood within walking distance of home.
  • Although the interaction of older people with dementia with the outdoor environment is limited, it is clear that it provides some sense of independence and self-respect at a time when they are losing control over their own abilities and lives.
  • Older people with dementia generally enjoy going out but anxiety, disorientation or confusion can occur in complex, crowded or heavily trafficked places or when startled by sudden loud noises.
  • Older people with dementia tend to be less aware of physical and social dangers in the outdoor environment and of the possibility of losing the way than older people without dementia.
  • Older people with dementia cannot always interpret the cues that signal the use of buildings, the location of entrances or the behavior that is expected in different places.
  • Older people with dementia continue to plan and visualize proposed routes and tend to use landmarks and other visual cues rather than maps and written directions as wayfinding techniques.
  • Older people with dementia tend to prefer mixed-use, compact local neighborhoods, quiet pedestrian streets and welcoming open spaces, simple explicit signs with large, dark, unambiguous graphics on a light background.
  • Older people with dementia prefer smooth, plain, non-slip, non-reflective paving and easy to use street furniture in styles familiar to older people.

These guidelines provide us with valuable insight in creating neighborhoods of the future.  As the dementia-friendly initiatives sweep our country, it is important that leaders gain the education and knowledge about dementia and how we might best work collaboratively to allow as much safe independence for our older adults as possible.

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and those who serve them.  She is the creator of the internationally recognized Dementia Live® Program, enabling those who care for and serve older adults to gain a first-hand understanding of living with dementia.  

http://www.AGEucate.com

Parkinson’s Disease and Dementia – What you Need to Know

Eldercare is becoming more about caring for those with dementia.  Because our fastest growing segment of the population are those 85 and older, it correlates with the rise in people living with dementia.  In fact, one in three people age 85 and older are living with some level of dementia.   There are over 1 million Americans living with Parkinson’s Disease and over 10 million worldwide.  This number is also rising with the increase in longevity.

According to the Alzheimer’s Association, Parkinson’s disease dementia is a decline in thinking and reasoning that develops in many people living with Parkinson’s at least a year after diagnosis. The brain changes caused by Parkinson’s disease begin in a region that plays a key role in movement, leading to early symptoms that include tremors and shakiness, muscle stiffness, a shuffling step, stooped posture, difficulty initiating movement and lack of facial expression. As brain changes caused by Parkinson’s gradually spread, they often begin to affect mental functions, including memory and the ability to pay attention, make sound judgments and plan the steps needed to complete a task.  About half of people living with Parkinson’s Disease have dementia.

Commonly reported symptoms include changes in memory, concentration, and judgment; trouble interpreting visual information; muffled speech; visual hallucinations; delusions, especially paranoid ideas; depression, irritability and anxiety; and sleep disturbances, including excessive daytime drowsiness and rapid eye movement (REM) sleep disorder.

Because Parkinson’s is such a highly complex disease, caregivers may often find that dealing with dementia symptoms are even more complex due to many other neurological effects of the disease.  It’s important that caregivers pay attention to declines in cognitive condition with their loved ones.  Noting behaviors and addressing these with their healthcare professional may help in determining if drug alterations may alleviate some of the dementia symptoms.

Care Partners for those living with Parkinson’s face many challenges due to the nature of the disease itself.  When cognitive decline becomes part of the mix, it can lead to extreme stress and anxiety.  Seeking education, support and resources are critical for care partners, as early as possible, is critical for families especially the primary caregiver.

Here are some resources that may help caregivers get started in learning more about dementia and Parkinson’s Disease.  I encourage finding local support groups to attend as these are often valuable in connecting with others, learning new tools to cope and understanding local resources.

www.parkinson.org

www.davisphinneyfoundation.org

www.michaeljfox.org

Pam Brandon is President/Founder of AGE-u-cate Training Institute and passionate advocate for older adults and those who care for them.  She is a 10-year care partner for her mother who lived with Parkinson’s Disease and has devoted many years to helping families live well with PD.  

www.AGEucate.com

Have you Heard of Dementia Friendly Purple Table Reservations?

I just learned about the Purple Table Reservations program and was beyond excited to learn and share with my readers.

This is straight from their website: www.purpletables.org :

The Purple Table Reservation flag and restaurant training program are designed for those who are living with Dementia/Alzheimer’s Disease, Autism, PTSD, TBI, a hearing or vision impairment, or other physical or cognitive condition that may benefit from a more predictable environment and additional accommodations when dining out. When making a Purple Table reservation, you may provide the restaurant with further details. However no further detail is necessary, a Purple Table reservation is all that is needed.

Families will know that when they make a Purple Table reservation at a participating restaurant, the restaurant and staff will go above and beyond to make your dining out experience enjoyable and successful.  They will provide the accommodations that work best, along with a little extra patience and attention from staff who have been trained to understand different needs and how to best try and accommodate.

Going out to lunch or dinner at a restaurant should be a lovely and relaxing experience.  It is something to look forward to, and many of us take the experience for granted.  However, many choose not to go out to eat because for themselves or someone they love it will be a challenging experience.  We wanted to change this.  Purple Table Reservations will change this.

This is just one more innovative initiative to change the landscape for persons living with dementia and other cognitive conditions, and their care partners.  We’ll be adding a link to Purple Table Reservations on our website as we engage and partner with more organizations, champions, and advocates for dementia friendly initiatives that are sweeping our country.   I love their website statement:

Embrace the Community.  A little extra patience goes a long way.  

Hats off to the creative and caring folks at Purple Table Reservations!

www.AGEucate.com

www.purpletables.com

www.dfwamerica.org