Tag Archives: compassionate touch

A Reflection: The Comfort of Touch for Family at End of Life

 

Touch is is a comforting gesture for both the dying and their loved ones.

My friend Andrew shared with me his reflections on the care his family received while his mother was in the hospital dying. He poured out his heart on paper to discuss how frequent expressive touch was a comfort to his mother, and himself.

He writes, “We would kiss her forehead, touch her shoulder or hold her hand with varied responses. Holding her hand was the clearest communication and the best way to tell if she was with us or not. Most days she would squeeze our hands or lift them to her face for a kiss. At times, these actions were silent, and other times accompanied by grunts or whispers or even an attempt to speak.”

“The staff were lovely and compassionate people who understood her needs, but also our needs as family members. I saw many nurses and aides greet Mom on a good day with a hug or try to wake her gently with a hand on her shoulder, but there were also hugs for us.”

“We craved something to do, some way to comfort her and let her know she wasn’t alone. These small gestures of touch were all we had in her final days and the only way we could communicate with her.”

Touch:  A Final Connection

“In the end, she no longer responded to touch because hospice was doing their job correctly. We will never know what she understood and felt in those precious moments, so we continued to touch her. That small amount of physical contact was as much a comfort to us as we hoped for her.”

“Holding her hand, the hand that comforted me as a child, was again comforting me as an adult.”

Andrew’s words flew off the page at me because it gets to the heart of the work we do at the AGE-u-cate Training Institute with Compassionate Touch training. Touch is the first sense that develops in the womb and is a fundamental human need throughout our life course.  Through touch, care-giving professionals who work with families of dying persons can positively impact end-of-life care for both patient and family.

Thank you, Andrew, for reminding us of the impact that touch can have on the living, and the dying.

 

Shared by permission from Andrew Azzarello, a person with a personal and professional passion for eldercare.  Andrew continues caregiving responsibilities for his father and is the former Director of Human Resources for two aging services organizations.

Julie has worked in Aging Services for over 30 years and has been a Licensed Nursing Home Administrator since 1990. She is a Certified Master Trainer with the AGE-u-cate Training Institute. Through her company Enlighten Eldercare,  Julie provides training and educational programs on elder caregiving to private and professional caregivers.  She is an instructor and the Interim Director of Gerontology at Northern Illinois University and lives in the Chicago Northwest Suburb of Mount Prospect, IL.

Infection Control and Expressive Touch: We Can Have Both

The healing benefit of expressive touch is lacking in the lives of older adults.

The topic of infection control almost always enters the conversation when I deliver Compassionate Touch training.  This training teaches caregivers the skill of expressive touch.

Hand, back, and foot rubs used to be a part of the care process.  Seasoned nurses consistently confirm this fact.  In contrast,  newer nurses and nursing assistants report that expressive touch was not a part of their training.

This lays the foundation to discuss the reasons why older, frail adults lack expressive touch in their lives.

Glove Culture and Expressive Touch

Infection control is consistently cited by skilled nursing employees as a reason for the lack of expressive touch in the lives of older adults.    Furthermore, employees fear citations from surveyors for not using gloves.

Megan J. DiGiorgio, MSN, RN, CIC, FAPIC  coins the phrase “glove culture”.  In addition to the wasteful use of resources, the over-use of gloves increases disconnection and a lack of trust in caregivers, among other negative outcomes.

Burdsall, Deborah Patterson, MSN, Ph.D.,  identified situations that require the use of gloves.  Touching intact, non-infectious skin of older adults in healthcare settings does not require gloves.

Skilled nursing caregivers do expressively touch their residents.  Indeed, holding a hand or giving a hug communicates how much we care and provides comfort.  We can incorporate more of this excellent medicine of expressive touch in our caregiving practices and still uphold infection prevention standards.

Gloves are not used with Compassionate Touch techniques. I urge those I am teaching to resist the temptation. The benefits of touch would be lost for both the resident and care provider.

Consider evaluating the extent to which gloves are used in your community and understand the unintended consequences.  Even more, it seems like this would be a worthwhile QAPI project.

 

Julie has worked in Aging Services for over 30 years and has been a Licensed Nursing Home Administrator since 1990. She is a Certified Master Trainer with the AGE-u-cate Training Institute. Through her company Enlighten Eldercare,  she provides training and educational programs on elder caregiving to private and professional caregivers.  She is an instructor and the Interim Director of Gerontology at Northern Illinois University and lives in the Chicago Northwest Suburb of Mount Prospect, IL.

Learn the The ABC of Compassionate Communication

I’m delighted to share that our Australian Master Trainer, Sue Silcox has authored and published a book – The ABC of Compassionate Communication.  Sue is passionate about helping people become empowered through learning, practice, support, and self-care.

Brain Sparks and the ABC of Compassionate Communication is the result of her many years of working and playing with people of all ages, many of whom needed more compassion in their lives as well as an empathetic ear.

In the ABC of Compassionate Communication you will learn:

  • How we can use our brain to increase empathy
  • Where we can connect with other people and groups
  • When friendships matter
  • What laughter has to do with compassion
  • Why people react the way they do

We communicate every day.  Sometimes in subtle ways, sometimes in frighteningly revealing ways, mostly in different ways in between. Often we are misunderstood, or we interpret the messages incorrectly.  Becoming aware of how, through understanding, we can send and receive those message with compassion will make not only the lives of those we love and care for better but ours too.

Through this easy-to-read book, which uses the letters of the alphabet to describe steps to compassionate communication, you will receive twenty-six facets of compassionate and their relationship to improved communication compiled in a way that you will have not seen before.  Each facet gives you the chance to delve deeper with tips and ideas that you can try for yourself.

In the ABC of Compassionate Communication, Sue starts by asking our aware are you, firstly of your own self?  Self-awareness helps us find our strengths and allows us to work out where we need to improve.  Self-reflecting on situations can show us where we match up to our expectations and values.

Sue points out that working on your self-awareness brings benefits not only to you but to those around you.  Thinking about how you reacted with others brings awareness to your connections with others and ultimately makes you happier.

The book is full of compassionate communication tips that will serve anyone, especially those who care for persons living with dementia.  This book may be ordered through the Brain Sparks website.

Pam Brandon is President and Founder of AGE-u-cate® Training Institute and a passionate Advocate for older adults and those who serve them.  She is the Creator of Dementia Live® Sensitivity Awareness Program, helping caregivers worldwide to better understand and communicate with persons living with dementia.  

Sue Silcox is Australia’s AGE-u-cate® Lead Trainer and may be reached at Sue@brainsparks.com.au

 

Careers in Aging – Proactive Approaches to the Looming Crisis

March 3 -7 is Careers in Aging Week and an appropriate time to talk about the importance of this topic.  No longer are the shortages of direct care staff and others in long term care a subject of the future.  The crisis is looming and it is serious.

The number of Americans 65 and older is projected to grow to 98 million by 2060, more than double the number we had in 2016.  According to the Population Reference Bureau, between 2020 – 2030, the number of older adults in America will grow by 18 million as the youngest baby boomers hit 65.

Like me, the baby boomers that are marching forward are asking ourselves, “Who will take care of me?”  While families have and will be forced to take on the caregiving tasks for their loved ones, it simply is not the answer or reality for many Americans.   Boomers and GenXers are working,  families are not geographically close enough to take on the role of primary caregivers, the numbers of widows and widowers are growing and many elderly are childless.

According to Government statisticians, home care is one of the nation’s fastest-growing occupations, with an additional million workers needed by 2026!  That is an increase of 50% from 2014.

Without pouring through any more statistics,  growing careers in aging is no longer an option – it must become a priority that starts with our government leaders and is embraced by stakeholders across the spectrum.  It is not a US-only challenge – it is a worldwide crisis that must be addressed sooner rather than later.

Work in long term care, especially direct care workforce has long been associated with low wages, often inconsistent work schedules, limited company benefits, and poor training.  The economic boom has pulled workers from long term care into retail, restaurants, hospitality and other similar businesses that are paying higher wages.  It’s been a catch-22 but the fact that the shortages are colliding with an unprecedented demand is especially frightening.

Without pouring through any more statistics,  growing careers in aging must be a priority that starts with our government leaders and is embraced by stakeholders across the spectrum.  It is not a US-only challenge – it is a worldwide crisis that must be addressed sooner rather than later.  Unfortunately, advocacy and lobbying take many years, of which we simply do not have time to wait.

What are the solutions?   There are not any easy ones, but perhaps looking at what we can do locally to turn the tide is going to result in positive outcomes.  We see our partner providers taking our Dementia Live® training to nursing schools, high school students and even out into communities who are embracing Age-Friendly and Dementia Friendly initiatives.  Raising awareness of the growing elderly population and their needs is huge.  Intergeneration programs among schools and churches and the elderly are setting an early example with children that respecting and taking care of our older adults is our duty.

Building awareness is a grass-roots effort and home-grown.  It means take creative efforts to work with others that include public entities, community-based organizations, political leaders and the private sector.  It means elevating the professional standards for those who choose careers in aging.   Careers in Aging is a field that is extremely rewarding.  We can do a better job of conveying this to our younger generation, and even an older generation who is looking to keep working and giving back.   What better way is there to give back than to serve others.

I’d like to hear what you are doing to bring awareness and educate others in your community!

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and those who serve them.  You may reach out to Pam at pam@ageucate.com.