Tag Archives: dementia care

Back to Basics in Dementia Care – Are We Making it too Complicated?

Hand with marker writing the word Back to BasicsThe number of older adults with dementia is forecast to more than double in the next 40 years.  Training people to care for these individuals – both professionals and families is paramount in improving the quality of life for the caregiver as well as the care receiver.  Is it time to get back to basics in our approach to education and training?

Attitudes, skills and knowledge of staff working with people who are living with dementia have the potential to influence the person’s well-being, quality of life and function. Training is often seen as the means by which changes in quality of care can be pursued, and there are an increasing number of opportunities for staff in dementia care to attend training courses  to help improve competence in care. However,  there is evidence in many fields that training alone is not sufficient to effect significant positive change.

Grounded in the philosophy of person-centered care is that each person is an individual with his/her own values, needs, family situations, spiritual beliefs and lifestyles.  Being compassionate, thinking about things from another person’s perspective and being respectful are all basic qualities of person-centered core values.  It is certainly not just about activities.  Core personal values in communications, engagement and relationship building are back to basics skills that are:

 

Feasible:  Uses existing resources, are easy for staff to learn and practically ensures sustainability

Is Effective: Eases physical and emotional distress, builds trust in caregivers and provides a holistic personalized approach

Encourages Family Engagement:  Provides a means for family to support their loved ones and enhances the family, staff teamwork

Improves Staff Satisfaction:  Empowers staff with meaningful tools, reduces fatigue and builds core competencies

Getting Back to Basics is the Simplest Means to Find Calm in the Chaos…

Pam Brandon is President/Founder of AGE-u-cate® Training Institute, whose Dementia Live™️ and Compassionate Touch® programs are transforming care across the US and abroad.  

www.AGEucate.com

 

 

Caregiver Burnout: What to Look for and How to Help

burnout - ngste CLosing sleep, poor eating habits, irritability or short tempered – these symptoms may start small and snowball quickly into what is referred to as caregiver burnout.   Professionals and families need to know what to look for and how to help caregivers.  It’s a serious matter and growing, as more families are caring for their loved ones at home with little or no help.

Caregiver burnout is a state of physical, emotional, and mental exhaustion that may be accompanied by a change in attitude – from positive and caring to negative and unconcerned.  Burnout can occur when caregivers don’t get the help they need, or if they try to do more than they are able to do – either physically, emotionally or financially.

Guilt is a huge problem with caregivers, especially those who are caring for someone with dementia or other chronic illness.  As I reflect on my many years caring for my parents, I think guilt was the over riding struggle.  Like most caregivers, I felt guilty when I was not spending time with my parents, and when I was caring for them I felt guilty that I wasn’t with my children and husband.  It was a constant balancing act – and more than often I felt that I was on the low end of the teeter totter.

Symptoms of caregiver burnout are similar to symptoms of stress and depression:  They may include:

  • Withdrawal from friends, family and social activities
  • Irritability
  • Altered eating patterns
  • Increased sugar consumption or use of alcohol or drugs
  • Frequent headaches or sudden onset of back pain
  • Impatience
  • Loss of compassion
  • Overreacting to criticism or commonplace accidents
  • Resenting the care recipient and/or situation
  • Wishing to “have the whole thing over with”
  • Feeling trapped
  • High levels of fear and anxiety

Playing the “if only games; saying over and over “if only this would happen; or “if only this hadn’t happened”

It is critically important that senior care professionals understand what to look for when they are talking with families.  Symptoms may start slowly but can quickly snowball into a serious situation. Protecting our older adults from neglect and abuse means a watchful eye and being able to guide families with support and help the need.

A few sources for help and assistance are:

      • Social workers
      • Faith based counselors
      • Family Caregiver Support Groups
      • Area Agencies on Aging (hotline 800-963-5337) (www.n4A.org)
      • Alzheimer’s Association 24/7 helpline (800-272-3900) (www.alz.org)
      • National Elder Abuse hotline (800-677-1116)

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www.ncea.acl.gov

    )

Pam Brandon is President/Founder of AGE-u-cate® Training Institute and creator Dementia Live™️ experience, helping caregivers worldwide to better understand dementia and aging, transforming professional and family caregiver’s ability to better care for our older adults.  

www.AGEucate.com

 

 

 

 

The Transformational Power of Touch in Dementia Care

073b5c55b0caf45ad6bb584bf7d4ede6-2Touch is one of our most fundamental needs.

It is the first sense to develop in the womb and one of the last ones to go during dying.  Although our situation, age and condition may change the need for human contact does not.

Why, then is touch deprivation so real in old age?  

It occurs, in part, because of separation from loved ones but mostly because of fear on the part of younger people. Fear of looking at old age up close and personal. I think that if old people are thought of as former people the assumption is they no longer have the same needs as when younger. When it comes to touch this idea really misses the mark! According to  Jane A. Simington, RN, PhD conducted a literature review and her findings were published in Humane Medicine Journal. She reports:

Older persons report that touch conveys fondness, security, closeness, warmth, concern, and encouragement, and makes them feel an increased sense of trust and well-being. They report that touch helps them to develop close, trusting relationships with staff and other residents. As tactile sensitivity decreases, the need to receive expressive touch may increase. Nature can be cruel however, and the elderly person often may have no one to provide this increased touch. The children are gone and the partner has died. One elderly woman put it this way, “Sometimes I hunger to be held. But he is the one who would have held me. He is the one who would have stroked my head. Now there is no one. No comfort.”

Caregivers can be agents of change and have the power to profoundly impact quality of life for older adults by reversing the effects of touch deprivation. Of course there are physical benefits of skilled touch that  result in improved function in activities of daily living.  Proper touch alleviates aches and pains and improves circulation, resulting in greater ease of movement and the ability to perform physical tasks with greater comfort. It can induce a relaxation response, leading to improved sleep quality and feelings of calmness. But focusing only on the physical benefits adds to the medicalization of aging.

Rather than viewing touch as a treatment for ailments let’s look to it as a way to validate the human experience of aging. The gift of caring touch encourages feelings of self-acceptance and worthiness. But our influence goes even further. By literally reaching out to older adults we demonstrate wholesome attitudes about aging. Maybe by our own actions we will encourage others to be more willing to touch our elders. Society as a whole stands to gain.

Ann Catlin, OTR, LMT is an expert and educator in the field of therapeutic touch and the creator of the groundbreaking Compassionate Touch® program for those living with dementia or at end-of-life.  Professional and family care partners are witnessing transformational change by using the Compassionate Touch program to engage, connect and comfort.  Compassionate Touch is a program of AGE-u-cate Training Institute, whose mission is developing cutting edge aging and dementia training.  

www.AGEucate.com

Montessori methods – beyond child’s play for dementia care

automobile di latta a molla - setteMontessori’s education method for childhood learning was launched in the early 1900s by Maria Montessori.  It calls for free activity within a “prepared environment”, meaning an educational environment tailored to basic human characteristics, to the specific characteristics of children at different ages, and to the individual personalities of each child. The function of the environment is to help and allow the child to develop independence in all areas according to his or her inner psychological directives. In addition to offering access to the Montessori materials appropriate to the age of the children, the environment should exhibit the following characteristics:

  • An arrangement that facilitates movement and activity
  • Beauty and harmony
  • Cleanliness of environment
  • Construction in proportion to the child and her/his needs
  • Limitation of materials, so that only material that supports the child’s development is included
  • Nature in the classroom and outside of the classroom
  • Order

Thankfully, advances in the field of elder caregiving have moved activities beyond the three Bs (bingo, birthdays and Bible) to more resident centered engagement activities.  Culture change initiatives have definitely helped to push the creative buttons of activity, memory care and  resident engagement leaders to foster the understanding that every person has individual needs and capabilities and a one-size fits all approach simply doesn’t work.

Montessori is NOT a program but a philosophy  based on individualism.  Translating this to eldercare, the Montessori philosophy is neither difficult to understand and certainly not complicated or expensive to integrate.  A few key points to get started is to take time to:

  • Understand the elder’s interests and needs
  • Learn their current physical, social and emotional needs
  • Create opportunities for them to develop their capabilities
  • Encourage positive learning by keeping it simple
  • Develop positive communication skills (slow down, use eye contact, use skilled touch to engage)
  • Use humor and always smile – it will help relieve frustration and build trust between care partners

And lastly remember basic eldercare protocol:

  • Don’t use materials that are childish
  • Limit other stimuli while trying to engage in an activity.  ex: tv off is almost always going to lead to more successful engagement
  • Avoid at all costs, correcting someone but instead guide them gently as they attempt to accomplish a task.
  • Remember there is never a “right” or “wrong” way to do something

www.AGEucate.com