Tag Archives: Hospice care

Hospice professionals: He’s an Invalid Now. Really?

Words have power - handwriting on a napkin with cup of coffee
Words have power – handwriting on a napkin with cup of coffee

“He’s an invalid now.” These words were uttered by a hospice caregiver. I can’t recall  I heard this comment, but it wasn’t all that long ago.  Now, I haven’t used the word invalid to describe a person probably since I was a kid who didn’t know better.  The culture change movement has generated a lot of discussion about words we use to describe people over a “certain age”.  (That’s me- yikes!)

Language matters:

Elder versus elderly. Community instead of nursing home. Care partner instead of caregiver.  Person rather than patient. Older adults versus senior citizens.  I’m especially sensitive to what eldercare or hospice professionals call people.  I know plenty of these folks and I’m here to tell you they are not invalids.

Think about that word. Invalid. In (without) valid (validity).  Really? That’s like saying “you’re sick, you’re old, you don’t matter anymore.” Curious, I looked online to see if this word is still being used much. Webster’s online dictionary tells us that the first recorded use of invalid to describe a “sickly” person was in the early 1700′s. Then I saw something interesting. Webster’s asks people to comment on what prompted them to look up the word. One man commented, “I recently (for the first time) was described as an “invalid” because of my chronic arthritis.” Another said,” They told my wife she was an invalid. She is going for lung transplant.”  New Zealand’s financial assistance program called Work and Income has a benefit called the Invalid Benefit.  So it looks like this term is hanging around.

I can hear some of you saying, oh good grief, Ann, it’s just a word- get over it!. But there is power and energy in words.  When someone is already dealing with major health and life challenges, the last thing he needs is to be “invalidated”.

The person labeled as invalid is still of value; still has relationships; passions; and a life to live. And he can teach the rest of us a little about the grace and grit of our humanity. How’s that for validity?

Hospice Care: Can Compassion be Taught?

hospice-care compassionSome think compassion is an attribute reserved for people like Mother Teresa. But compassion isn’t just reserved for those who travel a moral high ground.  Hospice care professionals cultivate compassion for when they are called to the bedside.

Compassion is Good Medicine
Compassion has many qualities, most noteworthy loving-kindness and heart-centered. Therefore, compassion is a heartfelt concern for suffering coupled with wanting to ease the suffering. Scientists show interest in the impact of compassion. As a result they’re finding that it’s good medicine. The Center for Compassion and Altruism Research and Education conducts scientific studies of compassion and altruistic behavior. Scientists look beyond Western “hard science” to learn about human behavior and emotions.  Neuroscientists conduct brain studies to discover how compassion affects us biologically.

A study published in the Journal of Clinical Oncology showed that 40 seconds of compassionate communication from a physician reduced anxiety and increased confidence among breast cancer patients.  In hospice care compassionate communication may enhance the experience for the patient. But it may also help hospice care professionals find greater satisfaction in their work.

How to Cultivate Compassion
Compassion is a human quality. With intentional practice it arises spontaneously.  Many heart-centered practices exist. Anyone serving people in hospice care can integrate such practices. Especially  relevant is the following example.

Sit comfortably. Be in your body and focus your attention upon your breath. If you wish, place one or both hands over your heart.

First, direct loving kindness to yourself.

Picture two or three people who care about you. Imagine them looking lovingly at you. These might be people in your life now or in the past or even spiritual figures. What would they wish for you? Repeat these simple phrases imagining they were saying them to you.

May you be filled with kindness and compassion.

May you be safe in every way.

May you be well in body and mind.

May you be happy.

May you live with ease.

How do you feel? Notice what arises trying not to judge thoughts, but simply let them pass through your mind.

Next picture someone you would like to send compassion to. It could family or a friend; a co-worker; a stranger; or even  someone you find challenging. Repeat the same phrases except this time direct them to this person. Again, sit for a few minutes simply noticing anything that arises in your mind.

To end, take in a deep, cleansing breath and bring your awareness back into your body. In conclusion, offer thanks for the experience in whatever way you wish. Perhaps a simple “thank you” will do!