Tag Archives: families

How Counseling Can Help Caregivers Cope with Emotions

Caring for a close family member friend can be emotionally overwhelming.  While many caregivers find fulfillment in helping another person, along with this comes feelings of loss, anger,  grief, and guilt.  Caregivers struggle with depression and anxiety at a much higher rate than the general population.  Counseling can be very beneficial for helping people with what is called caregiver burnout.

Learning to cope with the myriad of emotions that accompany caring for persons with dementia is critically important.  Unfortunately too often caregivers don’t realize they are spiraling downward until it’s too late.  The importance of self-care goes well beyond eating right and exercising when it comes to caregiving.   Counseling can be beneficial in allowing caregivers to express their emotions, while also benefiting from non-judgemental guidance that counselors can provide.

There is sound evidence that counseling and support groups can reduce stress in caregivers of people with dementia. This evidence is strongest for face-to-face or telephone assistance that is targeted at caregivers with depression and tailored to the individual and their circumstances. If caregivers can learn how to respond to persons with dementia, and understand the signs of depression and anxiety in themselves, they are much better prepared for day-to-day changes that are inevitable.

Caregiver burnout is a state of physical, emotional, and mental exhaustion that may be accompanied by a change in attitude – from positive, and caring to negative and unconcerned.  Burnout can occur when caregivers don’t get the help they need, or they try to do more than they are able, either physically or financially.

Symptoms may include fatigue, stress, anxiety, depression, withdrawal from family and friends, loss of interest in hobbies or activities, feeling irritable, hopeless and helpless, change in appetite, weight or both, changes in sleep patterns, getting sick more often, excessive use of alcohol or medications, and even feelings of wanting to hurt yourself or the person you are caring for.

Factors that lead to caregiver burnout include role confusion, unrealistic expectations of yourself or others, lack of control, unreasonable demands and lack of caregiver education.

If you or a loved one has signs of caregiver burnout, please seek a support group or counselor as soon as possible.  The snowball or domino effect of burnout can have many detrimental effects on care partners and their families.

If you would like a list of Symptoms of Caregiver Burnout, please contact us and we will send you this list, which we suggest you tape on your bathroom mirror to remind yourself of what to watch for.

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and those who serve them.  

http://www.AGEucate.com

For 24/7 hotline contact ww.alz.org

How Can We Lovingly Embrace the Ending…Tips for Families

What is a harder conversation topic with elderly parents – money or death?  If you guessed death, you get a gold star.  Why do we find it so very difficult to discuss the inevitable?  Surely we’ve all come to grips with the fact there is one thing certain about life and that is death.  We can embrace the ending by learning to embrace the life that we still have with our loved ones until the times comes when they are no longer with us.

Often it is not death that frightens people but the process of death.  Will there be pain, suffering and will it linger?  Fear of the unknown often is what ties us up into a pretzel of NOT wanting to talk about the ending.  What if we could learn to open up conversations so that everyone could be more prepared for the unknown, more accepting of death itself, and in turn make the process of dying a compassionate and loving experience?  Sadly, too often I see insecurity indecisions and pain overtake what could be a sweet time of compassion, filled with memories in itself.  Memories to embrace and treasure.

Most families have a considerable amount of unfinished business in this arena.  Here are some tips on how to open doors of communication, come to grips with what some call a “long goodbye”, especially those living with dementia or other chronic illness, and certainly lastly how to make the goal of acceptance and compassion be first and foremost in all planning, decision-making, and conversations.

  •  Make your wishes known.  That means we listen to our loved ones, preferably long before we have to make difficult decisions for them.  I want to interject here that we all need to understand that we should be guided by Plans A, B, and C – understanding the Life Plan A almost never is a reality.  That said, as care partners and families we do our very best to fulfill those wishes, but many circumstances may make that impossible.  Far too many times I’ve heard promised made to loved ones that they will be able to pass at home.  When the time comes, and that is not able to be fulfilled the family member feels horrible guilt.   Remember, we should be open and honest in lovingly expressing that we will do all we can to fulfill their wishes, but that it may not be possible for a number of reasons.
  • Spend more time embracing the moment of the ending rather than funeral plans.  Why is it that we agonize over what songs will be sung and flowers delivered – when our loved one needs our compassionate hand to embrace and hold at this moment?  Far too long we have gotten priorities a bit confused would you agree?  What if we put that energy and emotion into what can be embraced int he here and now?
  • Remeber that one’s feelings and emotions remain intact, although declining, until the end of life.  Response to touch, expression, love, music, even nature can have profound effects on the dying person.  Talking “around” a dying person is as much a sign of disrespect as it is a sign that they’ve been dismissed as a person.

“Our ultimate goal, after all, is not a good death but a good life to the very end.”
Atul Gawande, Being Mortal: Medicine and What Matters in the End   

Pam Brandon is President/Founder of AGE-u-cate Training Institute and a passionate advocate for older adults and those who care for them.  She is co-creator of the Compassionate Touch® program for end-of-life care.  www.AGEucate.com 

How do Caregivers Walk in the Shoes of a Person with Dementia?

Walking in the shoes of someone living with dementia is challenging at best, especially since every person, like shoes –  is different!  There is an urgent need to help professional and family caregivers communicate and respond to the needs of their care partners.  A walk in their shoes is a powerful and very needed training and education tool to help others develop understanding, empathy and improve care.

Like shoes,  people with dementia all are different.  In fact, what makes the caring journey so very stressful for many care partners is that their care partners ARE so different – sometimes changing moods, personality, needs and temperament many time within a day or even within an hour.

So what is the solution as we face the exploding numbers of people who are living with dementia be better understood, accepted and cared for?  

The experience of living with dementia will help care partners feel the anxiety, fear, loneliness and agitation that accompanies living with Alzheimer’s or other forms of dementia.  By literally walking in their shoes for a short time, they gain empathy and understanding that is unlike anything else.

What do care partners really learn once they have gone through such an experience?

In order to create change… lasting change that is, care partners must have tools that accompany the “aha” moment of walking in their shoes.  Some of these tools include:

Better communication skills.  Believe it or not, simple and effective changes in how you speak to and with someone with dementia can have a profound effect on building their trust and moving to healthy engagement and relationship building.  These tools include speaking clearly, eye to eye contact, slowing down and never arguing are just a few effective changes that can make a positive impact on both care partners.

Improving care processes by taking the time to understand a person’s daily habits, gaining input from family members, and focusing on key areas that often are stressful for persons living with dementia:  bathing, oral care, dressing, toiling and eating.

Creating a dementia friendly environment accommodates for the changing needs of a person living with dementia while at the same time creates opportunities for independence.  Checklists to access the home and perimeter can create a safe environment while at the same time small changes in creating signage vs. writing will help with prompts that may help a person live more independently.

Understanding caregiver burnout is a tool that every care partners, whether they are professionals or families must take seriously.   Caregivers of persons living dementia face upwards of a 60% increase in risks associated with high levels of stress.  In order to improve care we MUST help caregivers remain healthy.

Sensory changes that affect persons with dementia include hearing, visual perceptual change and tactile processing.  By learning to walk in the shoes of someone living with dementia, these sensory changes are key elements for caregivers to understand.  Learning these changes from the inside-out will have profound effects on caregivers, those who work with older adults, those in the healthcare professions, students and more.

Learn more about the internationally recognized Dementia Live® program at www. AGEucate.com.  .  

Pam Brandon is President/Founder of AGEucate® Training Institute and creator of the Dementia Live® Simulation program being used throughout the US and internationally to transform care partners understanding of those living with dementia, leading to improved care.   

 

Holiday Traditions…Accepting Change and Transition

or christmas cooking and kitchen utensils on wooden table, top view

I love traditions, especially holiday traditions.  Being from a large Italian/Norwegian family food played a big part in these traditions.  We didn’t just make a few dozen Christmas cookies.  We made hundreds and hundreds of cookies.  The Friday after Thanksgiving was when the season’s serious cookie baking kicked off.

My mom and I would gather the old family recipe cards, many which were already decades old by that time.  We’d gather our shopping list, pull the tins (that were only used for Christmas cookies), clear the kitchen table and enthusiastically start the month long activity of creating sugary, buttery, nutty, chocolaty, almondy, gingery, cinamonny wonders.

My dad was only allowed the burned or “seconds” cookies, which he looked forward to at least one or two from each batch.  Other than that, the cookies were layered in tins and frozen, and not to be touched until Christmas eve.

As our family evolved, kids married and moved away,  Christmas gatherings were no longer always in the high double digits.  But for some reason, even when I too was married and starting my family, there was always the sense that it wasn’t Christmas without truckloads of cookies being lovingly created.  As the years past, I had to get a grip on the fact that 600 cookies was not necessary for a family of four, even with many plates for friends, shut-ins and church  events.

Traditions are certainly important.  They remind us who we are and they give us an identity and purpose in this big crazy world.  Accepting that traditions can evolve is also very important, or it can lead to feelings of disappointment and sadness.

How can we keep traditions alive while adjusting to changes in life, circumstances, and the people with whom we share these life memories?

Here are some suggestions that I came to grips with as my own parents aged and as physical and cognitive decline made us look at holidays at what was important.

  • Accept that change is a part of life, and be open to trying something new and different.  Wow, this was tough for me, but when I did – guess what?  It made me feel free.  Instead of a small shipload of cookies, I was happy to bake just my very very favorites.  In doing so, I freed myself up to enjoy other things during the Christmas season that I enjoyed.
  • Decide what is important and make that a priority, but know you may have to scale back.  Attending Christmas church services and festivals was and always will be at the core of my joy during the season.  As my mom’s Parkinson’s disease progressed, it became difficult to get out, so we chose just a few simple services and concerts that were more manageable and enjoyable for both of us.
  • Big is not always best.  In fact, I can say with conviction that in the years I’ve shared this with caregivers, it is almost a universal fact that if we focus on quality, quieter visits, it becomes much more enjoyable that large boisterous crowds.  We think that is a gift, but in actuality, most older adults begin to feel very overwhelmed and anxious is this environment.  So instead of ALL the family, set aside small bits of time to enjoy your loved one with conversation, touch and just the joy of presence… that is preserving the moment.
  • Accept last minute plan adjustments.  Illness, disability, cognitive decline or any other number of circumstances may mean that a holiday plan may need to be canceled or changed.  This is called life, and if we accept it with grace, it will be less stressful on caregivers, families and your loved ones.  Sometimes these unexpected changes are actually blessings in disguise for accepting what may be a new normal.

It has been 10 years since my mother’s passing, and while I hold these traditions near and dear, I have also been able adopt new traditions with my family that make life all that much richer.  My hope is that you may do the same.

Pam Brandon is President/Founder of AGE-u-cate® Training Institute and a passionate advocate for older adults and those who care for them.  

www.AGEucate.com